About Brandon

About Brandon

February 8, 2003 at 8:03 am

Weight: 8 lbs & 6 ounces
21 inches

“Brandon has been diagnosed with S.M.A. Type 1(Spinal Muscular Atrophy) at the age of 3 months old. It's a fatal genetic disorder and the doctors do not believe he will make it to his first birthday.
- God Bless our Precious Angel Brandon.”
- Malune Rolen, May 2003

Brandon is the second child of Sampson and Malune Rolen. Brandon's older brother, Sampson, who will be 9 years old in April 2010, loves to play with Brandon so much, Brandon has to go onto his breathing machine because of laughing too much and not being able to catch his breath. When Sampson Jr. first found out about his brother in Mommy tummy, Daddy immediately told Sampson Jr. that he is going to be a big brother. Sampson Jr. was so happy that he hugged and kissed Mommy’s tummy and said, “I love you baby!"  And to this day, Sampson Jr. kisses Brandon every morning and watches over his brother with love and care. Sampson Jr. even helps Brandon with his feedings and makes sure Brandon has a toy to play with.

Brandon just turn 6 years old this year. He now weights 52 lbs.  Brandon's 24-hours home nursing car is supervised by Edelweiss Home Health Care. Our family doctor,  Dr. James Ilko of Ilko Family Medicine in Woodbury, MN as Brandon’s primary Doctor. Brandon also sees Dr. Michael Shreve and Dr. Paul Kubic, Pulmonologist from Childrens Hospital and also see Dr. Stephen Smith , Neurologist and Dr. Mark Gormely, Physiologist.  Brandon receives therapy from Farmington school district.

Brandon uses a lot of equipment to keep him healthy like BiPAP, Nebulizer, Cough Assist, Vest and Suction machine.  Brandon is fed through a G-tube.

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